ALS Ulm
ALS in Ulm
Pioneering Work and Leadership
The ALS Center in Ulm is built on the pioneering work of Prof. Albert Ludolph, who founded Germany’s first ALS center in 1996 and retired in 2024. Since 2024, Prof. Jochen Weishaupt, Medical Director of the Department of Neurology at Ulm University Hospital and successor to Prof. Ludolph, has been leading the center’s work in ALS diagnosis, treatment, and research into the future.
An Internationally Recognized Center
Over the past three decades, Ulm has developed into a leading international center for the research and treatment of amyotrophic lateral sclerosis (ALS). Patients from across Germany come to the Department of Neurology at Ulm University Hospital for diagnosis, second opinions, and interdisciplinary care. Key areas of expertise include respiratory care in ALS, the application of gene-specific therapies, the search for new ALS biomarkers, clinical therapeutic trials, and translational basic research.
Science and Collaboration
Since 2020, Ulm has been one of the sites of the German Center for Neurodegenerative Diseases (DZNE) and coordinates the German ALS network, which currently includes 25 sites. Close collaboration between clinical care, research, and partner institutions enables groundbreaking contributions—from the discovery of new genetic causes to the development of novel therapeutic approaches.
Research for the Future
The close integration of a specialized ALS outpatient clinic, research laboratories, a comprehensive patient registry, and a large biobank makes Ulm a key driver of ALS research. The overarching goal is to develop effective and sustainable treatment strategies to improve the long-term quality of life for people living with ALS.
Our Team
Prof. Dr. med. Jochen Weishaupt
Medical Director Department of Neurology, with a focus on neurodegeneration
Special focus: genetic ALS
Prof. Dr. David Brenner
Senior Consultant
Head Neurogenetics Outpatient Clinic Focus on genetic ALS
Prof. Dr. Karin Danzer
Head of a Research Group
Research focus: elucidation of pathomechanisms of neurodegenerative diseases
Prof. Dr. med. Johannes Dorst
Senior Consultant
Special focus: ventilation therapy and nutritional research
Dr. med. Zeynep Elmas
Senior Consultant
Special focus: antisense oligonucleotide (ASO) therapies
Elke Fröhlich
Contact person for study participation, organization and coordination of clinical studies
Dr. med. Regina Gastl
Senior Consultant
Special focus: electromyography (EMG) and neurological ultrasound
Kornelia Günther
Focus on data Management & biospecimen collection
Coordination of the ALS and MND Network Germany
Dr. Christine Herrmann
Resident Physician
Special focus: nutritional studies
Jasper Hesebeck‑Brinckmann
Resident Physician
ALS outpatient clinic, investigator in ALS clinical studies
Antje Knehr
Study Nurse
Coordination of the LUMINA study and familial ALS
PD Dr. med. Kornelia Kreiser
Head of Neuroradiology at the University Hospital Ulm (UKU), Campus North
Special focus: neuroradiology
Dr. med. Christina Lang
Senior Consultant
Special focus: sleep medicine
Prof. Dr. Dorothée Lulé
Head of a Research Group
Special focus: neuropsychology
Dr. med. Sebastian Michels
Resident Physician
Research on novel ALS biomarkers and investigator in ALS clinical studies
PD Dr. Patrick Öckl
Head of a Research Group
Identification and validation of novel biomarkers
Dr. med. Oezlem Parlak
Consultant Physician
ALS outpatient clinic, investigator in ALS clinical studies
Prof. Dr. Francesco Roselli
Head of a Research Group
Research on fundamental disease mechanisms
Prof. Dr. Angela Rosenbohm
Head of the Muscle Laboratory
Special focus: research on muscle diseases; ALS researcher
PD Dr. rer. nat. Joachim Schuster
Head Clinical Trial Center
Development of new ALS clinical studies, ALS researcher
Prof. Dr. Nico Sollmann
Head of a Research Group
Prof. Dr. med. Hayrettin Tumani
Head of a Research Group
Identification and validation of novel biomarkers
Dr. med. Ulrike Weiland
Resident Physician
ALS outpatient clinic, investigator in ALS clinical studies
Dr. med. Maximilian Wiesenfarth
Consultant Physician
ALS study physician and ALS researcher
Contact Us
| Phone | ||
|---|---|---|
| Contact for clinical trial participation | elke.froehlich@uni-ulm.de | +49 731 177 5362 |
| Contact for nutritional questions in ALS | ernaehrung@als-live.de | |
| Contact for donations | neurologie.uku@uniklinik-ulm.de | +49 731 177 1206 |
| Contact for ALS families | antje.knehr@uni-ulm.de | +49 173 3492361 |
| Contact for the German ALS Network – MND-NET | kornelia.guenther@uni-ulm.de | +49 731 177 5266 |
| Appointment scheduling for the ALS specialized outpatient clinic | Patientenlotsin lisa.benz@dgm.org | |
| Appointment scheduling for inpatient visits | casemanagement.neuro@uniklinik-ulm.de | +49 731 1775447 |
| Appointment scheduling for the neurogenetics clinic | david.brenner@uniklinik-ulm.de | |
| Appointment scheduling for the private consultation | sekretariat.neurologie@uniklinik-ulm.de | +49 731 177 1201 |
| Central contact for all other inquiries | info@als-live.de |