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MND-NET Conference 2026 has begun
The 4th MND-NET Conference 2026 has officially started in Frankfurt, bringing together around 120 participants from research, clinical practice, nursing,…
2nd Ulm ALS Family Day
💙 The 2nd Ulm ALS Family Day has now come to an end, and we are truly overwhelmed by the…
🧬 Beyond neurofilaments: Towards multidimensional biomarker profiling in ALS
Neurofilament light chain (NfL) has become the benchmark biomarker for ALS. But does it capture the full biological complexity of…
Impairment of NEK1 kinase function is sufficient to trigger ALS
While mutations in the NEK1 gene leading to a loss of the protein were previously the primary known cause of…
Final push!
The University Hospital of Neurology in Ulm is currently conducting a placebo-controlled study on the efficacy of a high-calorie, high-fat…
A New Chapter in Clinical ALS Research begins in Ulm
The successful conclusion of the agreement to conduct an innovative clinical trial marks an important milestone. The trial will evaluate…
Major EU survey on medical care for ALS patients
The ERN EURO-NMD, an EU-initiated and funded disease network, is developing a European care pathway for people with ALS as…
The Ulm ALS Center is part of an award-winning international consortium dedicated to developing ALS therapies using artificial intelligence
We are pleased to officially announce that the ALS Center Ulm is one of the 20 winning teams of the…
What is ALS.live?
ALS.live is an information and exchange platform of the ALS Center and ALS research activities in Ulm.
Our goal is to provide people living with amyotrophic lateral sclerosis (ALS), their families, healthcare professionals, and other interested audiences with clear and accessible information about ALS and ALS-related activities in Ulm.
Through ALS.live, we offer:
- Up-to-date research findings directly from ALS research
- Articles in which experts from medicine and science share their knowledge and insights
- An overview and explanation of the diverse ALS research and care structures in Ulm
The platform is intended as a bridge between scientific research, highly specialized care, and the everyday lives of people with ALS—transparent, accessible, and closely aligned with the needs of those affected.
How can I donate?
Support our work for people living with ALS—every contribution makes a difference. Your donation helps us advance research, support patients, and carry out important awareness and education activities.
You can make a general donation, allowing us to allocate funds where they are most urgently needed. Alternatively, you may choose to make a designated donation, for example to support a specific research project or patient program—please feel free to contact us directly to discuss your preferences.